Introduction to Administrative Data Sources

• Concept Dictionary: Administrative Health Data/Databases.

• Concept Dictionary: Secondary Data Sources.

• Population Health Research Data Repository.

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Databases and their uses

• Council of Canadian Academies.  Accessing Health and Health-Related Data in Canada. 2015. http://www.scienceadvice.ca/en/assessments/completed/health-data.aspx.
  (Marni Brownell was member of this panel)

• Jutte D, Roos LL, Brownell MD. Administrative Record Linkage as a Tool for Public Health Research. Ann Review of Public Health 2011;32:91-108. [read Abstract]

• Roos LL, Menec V, Currie RJ. Policy analysis in an information-rich environment. Soc Sci Med 2004;58(11):2231-2241. [read Abstract]

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Manitoba Centre and other Centres

• MCHP:

  • About MCHP

  • Reports/Deliverables

• Research Resources

• ICES - The Institute for Clinical Evaluative Sciences in Ontario.

• UBC Centre for Health Services and Policy Research.

• International Population Data Linkage Network. 

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Population Health and the Role of Medical Care

• Anderson, GF, Squires, DA. Measuring the U.S. Health Care System: A Cross-National Comparison. The Commonwealth Fund June 2010.  [read Abstract]. 

• Concept Dictionary: Health Indicators: Indicators of Health Status and Healthcare use.

• Concept Dictionary: Income Quintiles (just get a sense of the steps involved).

• Concept Dictionary: Socioeconomic Factor Index – Version 2 (SEFI-2).

• Jutte D, Brownell MD, Roos NP, Schippers C, Boyce TW, Syme SL. Rethinking What Is Important: Biologic Versus Social Predictors of Childhood Health and Educational Outcomes. Epidemiology 2010;21(3):314-323.

• Overview: Manitoba First Nations: Health & Health Care in an Aboriginal Population (a lecture in the Epidemiology Supercourse).

• Poverty: A Clinical Tool for Primary Care Providers  To ask, assess, act and inform patients about benefits available to Canadians 2016 

• Nancy Krieger.  Health Equity and the Fallacy of Treating Causes of Population Health as if They Sum to 100% American Journal of Public Health April 2017: http://ajph.aphapublications.org/doi/full/10.2105/AJPH.2017.303655 

• Report Summary: Growing Gaps in Wealth and Health for Manitobans. Winnipeg, MB: Manitoba Centre for Health Policy; Sept 2010.

• Stuckler D and Bansu S: “How Austerity Kills” New York Times. May 12 2013.

• Raj Chetty, David Grusky, M Heli, N Hendren, R Manduca, J Narang   “The fading American dream:  Trends in absolute income mobility since 1940” Science  28 Apr 2017.  pp 398 – 406 http://science.sciencemag.org/content/356/6336/398/tab-pdf

 

From Health Research to Social Research

• Forget E. The Town with No Poverty:  The Health Effects of a Canadian Guaranteed Annual Income Field Experiment. Can Public Pol 2011;37(3):283-305.

• Report Summary: Early Development Matters for Manitoba’s Children. Winnipeg, MB; Manitoba Centre for Health Policy; May 2012.

• Roos NP, Roos LL, Brownell MD, Fuller EL. Enhancing Policymakers’ Understanding of Disparities: Relevant Data from an Information-Rich Environment. Milbank Quarterly 2010;88(3):382-403.

• Report Summary: Evaluating INSIGHT: A Mentoring Program To Support Women Who Use Alcohol During Pregnancy. Winnipeg, MB; Manitoba Centre for Health Policy; October 2015.

• The Boston Foundation. The Boston Indicators Project.

• Khan AM, Urquia M, Kornas K, Henry D, Cheng SY, Bornbaum C, Rosella LC. Socioeconomic gradients in all-cause, premature and avoidable mortality among immigrants and long-term residents using linked death records in Ontario, Canada. Journal of Epidemiology and Community Health 2017;Eub ahead of print. [Abstract]

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Assessing System Performance

• Report Summary:  Surgical Waits in Manitoba: Up? Down? No Change? Winnipeg, MB: Manitoba Centre for Health Policy; June 2007.

• Newsletter: Quality of Surgical Care. Centre Piece, October 1996, Issue no. 3.

• Report Summary:  What’s the hold-up? Factors affecting wait times in Winnipeg’s emergency rooms. Winnipeg, MB: Manitoba Centre for Health Policy; Winter 2017.

• Report Summary:  What Works? Linking Health Outcomes with Promising Programs and Policies. Winnipeg, MB: Manitoba Centre for Health Policy; March 2008.

• Report Summary: The Educational Outcomes of Children in Care in Manitoba Winnipeg, MB: Manitoba Centre for Health Policy, June 2015.

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Quality of Care and Outcomes

• Report Summary: Chronic kidney disease in Manitoba. Winnipeg, MB: Manitoba Centre for Health Policy; December 2015.

• Katz A, Soodeen R, Bogdanovic B, DeCoster C, Chateau D: Can the quality of care in family practice be measured using administrative data? Health Serv Res 2006; 41(6):2238-2254.

• Report Summary: Physician Integrated Network Winnipeg, MB: Manitoba Centre for Health Policy; July 2010.

• Report Summary: Assessing Manitoba's Nursing Homes: Is Good Good Enough? Winnipeg, MB: Manitoba Centre for Health Policy; October 2006.

• Report Summary: Assessing Patient Safety in Manitoba Hospitals. Winnipeg, MB: Manitoba Centre for Health Policy; June 2006.

• Report Summary: Quality Indicators: Helping Good Doctors be Better. Winnipeg, MB: Manitoba Centre for Health Policy; March 2004.

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Research Using Social Data Sets: Kids at Risk

• Report Summary:  Manitoba Can Do Better For Kids In Care. Winnipeg, MB: Manitoba Centre for Health Policy; June 2015.

• Brownell M, Roos N, Fransoo R: Is the class half empty? A population-based perspective on socioeconomic status and educational outcomes. IRPP Choices 2006 12(5):1-30. [read abstract]

• Gilbert R, Fluke J, O’Donnell M, Gonzalez-Izquierdo A, Brownell M, Gulliver P, Janson S, Sidebotham P. Child Maltreatment: Variation in trends and policies in six developed countries. Lancet 2012; 379:758-572. [read Abstract].

• Jutte DP, Roos NP, Brownell MD, et al: The ripples of adolescent motherhood: Social, educational, and medical outcomes for children of teen and prior teen mothers. Acad Pediatr 2010 10(5):293-301. [read Abstract].

• Putnam-Hornstein E, Needell B. Predictors of child protective service contact between birth and age five: an examination of California’s 2002 birth cohort. Children Youth Serv Rev 2011;33:1337-1344. [read Abstract]

• Shonkoff JP, Boyce WT, McEwen BS. Neuroscience, molecular biology, and the childhood roots of health disparities: Building a new framework for health promotion and disease prevention. JAMA 2009;301(21):2252-2259 [read Abstract]

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Small Areas Analysis / Population Based Analysis

• Concept Dictionary: Small Area Analysis.

• Concept Dictionary: Winnipeg Area Definitions.

• Martens PJ, The Need to Know Team, Fransoo R, Burchill C, Burland E: Health status and healthcare use patterns of rural, northern and urban Manitobans: Is Romanow right? Healthc Policy 2006;2(1):108-127.

• Evans RG: There’s no reason for it, it’s just our policy. Healthc Policy 2009;5(2);14-24.

• Frakt A, Skinner J. The New Health Care. The Puzzling Popularity of Back Surgery in Certain Regions. New York Times. February 13, 2017

• Atul Gawande:  An avalanche of unnecessary medical care is harming patients physically and financially. What can we do about it?  The New Yorker. May 11, 2015

• Stukel T, Fisher ES, Alter DA, et al: Association of hospital spending intensity with mortality and readmission rates in Ontario hospitals. JAMA 2012;307(10):1037-45.

• Wennberg, DE et al.: “A population health approach to reducing observational intensity bias in health risk adjustment: cross sectional analysis of insurance claims” BMJ 2014; 348; g 2392

• Fisher ES, Bynum JP, Skinner JS: Slowing the growth of health care costs – lessons from regional variation. NEJM 2009;360(9):849-852.

• Franzini L, Mikhail OI, Skinner JS: McAllen and El Paso revisited: Medicare variations not always reflected in the under-sixty-five population. Health Aff 2010;29(12):2302-2309.

• Gawande A: The cost conundrum: What a Texas town can teach us about health care. The New Yorker June 1, 2009:e pages 1-11.

Look at Atlases produced from ICES, UBC Centre for Health Services and Policy Research, Center for the Evaluative Clinical Sciences, Dartmouth Medical School.

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Physician Practice Patterns and Physician Resource Analysis

• Concept Dictionary: Physician Service Areas.

• Concept Dictionary: Physician Service Areas (PSAs) That Fit Inside the RHAs.

• Report Summary: Understanding the Patterns of Ambulatory Care in Manitoba. Winnipeg, MB: Manitoba Centre for Health Policy; March 2013.

• Report Summary:  Primary Care Services in Winnipeg: Does it Matter how they are Organized? Winnipeg, MB: Manitoba Centre for Health Policy; Spring 2016

• Roos NP, Fransoo R: How many surgeons does a province need, and how do we determine appropriate numbers? Health Care Mgmt Forum 2001; 14(1):11-21 [read Abstract].

• Roos NP, Fransoo R, Bogdanovic B et al: Issues in planning for specialist physicians. Med Care 1999; 37(6 Suppl):JS229-253 [read Abstract].

• Welch WP, Miller ME, Welch HG, et al: Geographic variation in expenditures for physicians' services in the United States. N Engl J Med 1993; 328(9):621-628 [read Abstract].

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Population-Based Clinical Research

• Concept Dictionary: Adult Immunization.

• Concept Dictionary:  Diabetes - Measuring Prevalence.

• Katz A, Garland A, Leslie B, Moffatt M: Clinical research at MCHP over the next 20 years. Healthcare Policy 2011;6(Special Issue):88-90.

• Lix L, Yogendran M, Shaw SY, Burchill C, Metge C, Bond R: Population-Based data sources for chronic disease surveillance. Chronic Diseases in Canada 2008;29(1):31-38. [read Abstract].  delete?? and add???

• Report Summary: Linking Manitoba Cancer Data: An opportunity for partnerships and new insights. Winnipeg, MB: Manitoba Centre for Health Policy; January 2016.

• Report Summary: The Use of Intensive Care Units in Manitoba. Winnipeg, MB: Manitoba Centre for Health Policy; April 2012.

• Report Summary: An Ounce of Prevention: Manitobans and Immunization. Winnipeg, MB: Manitoba Centre for Health Policy; April 2011.

• Singh H, Turner D, Xue L, Targownik L, Bernstein C: Risk of developing colorectal cancer following a negative colonoscopy examination. JAMA 2006; 295(20): 2366-2372.

• Melesse DY, Lix LM, Nugent Z, Targownik LE, Singh H, Blanchard JF, Bernstein CN. Estimates of disease course in inflammatory bowel disease using administrative data: A population-level study. Journal of Crohn's and Colitis 2017;11(5):562-570. [Abstract]  

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Using Data to Address Specific Policy Questions

• Report Summary: Supportive Housing for Seniors: An Alternative for Some Personal Care Home Residents? Winnipeg, MB:  Manitoba Centre for Health Policy; Spring 2016.

• Brownell M, Roos NP: Monitoring the impact of hospital downsizing on access to care and quality of care. Med Care 1999;37(6 Suppl):JS135-150. [read Abstract].

• Liu L, Hader J, Brossart B, White R, Lewis S: Impact of rural hospital closures in Saskatchewan, Canada. Soc Sci Med 2001;52(12):1793-1804. [read Abstract].

• Menec VH, Roos NP, MacWilliam L: Seasonal patterns of hospital use in Winnipeg: Implications for managing winter bed crises. Healthcare Manage Forum 2002;Winter(Suppl):58-64. [read Abstract].

• Report summary:  Who’s in Our Hospitals… and Why? Winnipeg, MB:  Manitoba Centre for Health Policy; September 2013.

• Report Summary: Planning for Older Adult Care in Manitoba Winnipeg, MB: Manitoba Centre for Health Policy; February 2011.

• Also see: Report Summary: Seasonal Patterns of Winnipeg Hospital Use. Winnipeg, MB: Manitoba Centre for Health Policy; October 1999.

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Examples of Research Using Social Data Sets

• Brownell MD, Chartier M, Nickel NC, Chateau D, Martens P, Sarkar J, Burland E, Jutte DJ, Taylor C, Santos R, Katz A, and The PATHS Equity Team. Unconditional prenatal income supplement and birth outcomes. Pediatrics. 2016;137(6):e20152992. [abstract]

• Brownell MD, Nickel NC, Chateau D, Martens PJ, Taylor C, Crockett L, Katz A, Sarkar J, Burland E, & CY Gohand and the PATHS Equity Team. Long-term benefits of full-day kindergarten: a longitudinal population-based study, Early Child Development and Care. Early Child Development and Care, 185:2, 291-316. [read Abstract]

• Chartier MJ, Brownell M, Isaac MR, Chateau D, Nickel N, Martens P, Katz A, Sarkar J, Hu M,  Burland E, Taylor C. Is the Families First Home Visiting Program Effective in Reducing Child Maltreatment and Improving Child Development? Child Maltreatment, 2017, Vol. 22(2) 121-131 [abstract]

• Concept Dictionary: Pathways To Health and Social (PATHS) Equity (overview of series of program evaluations using MCHP Repository).

• Martens PJ, Chateau DG, Burland EMJ, Finlayson GS, Smith MJ, Taylor CR, Brownell MD, Nickel NC, Katz A, Bolton JM, and the PATHS Equity Team. The effect of neighborhood socioeconomic status on education and health outcomes for children living in social housing. American Journal of Public Health 2014;104(11):2103-13. DOI: 10.2105/AJPH.2014.302133.  [abstract]

• Nickel NC, Chateau D, Martens PJ, Brownell M,  Katz A, Burland E, Walld R, Hu M, Taylor C, Sarkar J, Goh CY, The PATHS Equity Team. Data Resource Profile: Pathways to Health and Social Equity for Children (PATHS Equity for Children). International Journal of Epidemiology 2014;43(5):1428-49. (full article)

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Use of Pharmaceuticals

• Concept Dictionary: Calculating Costs/Expenditures for Pharmaceuticals.

• Metge C, Black C, Peterson S, Kozyrskyj A: The population's use of pharmaceuticals. Med Care 1999; 37(6 Suppl):JS42-59 [read Abstract].

• Report Summary: Evaluation of the Manitoba IMPRxOVE Program Winnipeg, MB: Manitoba Centre for Health Policy; January 2015

• Alessi-Severini S, Bolton JM, Enns MW, Dahl ME, Chateau D, Collins DM, Sareen J. Sustained use of benzodiazepines and escalation to high doses in a Canadian Population. Psychiatr Serv 2016;Epub ahead of print. [Abstract]

• Azoulay L, Filion KB, Platt RW, Dahl M, Dormuth CR, Clemens KK, Durand M, Hu N, Juurlink DN, Paterson JM, Targownik LE, Turin TC, Ernst P, Canadian Network for Observational Drug Effect Studies (CNODES) Investigators. Association between incretin-based drugs and the risk of acute pancreatitis. JAMA Internal Medicine 2016;176(10):1464-1473. [Abstract]

• Bolton JM, Morin SN, Majumdar SR, Sareen J, Lix LM, Johansson H, Oden A, McCloskey EV, Kanis JA, Leslie WD. Association of mental disorders and related medication use with risk for major osteoporotic fractures. JAMA Psychiatry 2017;Epub ahead of print. [Abstract]

• Morgan S, Bassett K, Wright J et al: “Breakthrough" drugs and growth in expenditure on prescription drugs in Canada. BMJ 2005;331:815–6.

• Report Summary: Towards Optimization Prescribing and Guidelines in Manitoba  Winnipeg, MB: Manitoba Centre for Health Policy; December 2010.

• Report Summary: Pharmacare and its Impact on Manitoba Drug Use Winnipeg, MB: Manitoba Centre for Health Policy; December 2009.

    Also of Potential Interest

• Report Summary: The High Cost of High-Cost Drug Users in Manitoba. Winnipeg, MB: Manitoba Centre for Health Policy; March 2005.

• Report Summary: Controlling Prescription Drug Costs in Manitoba Winnipeg, MB: Manitoba Centre for Health Policy; October 2003.

• Targownik LE, Lix LM, Metge CJ, Prior HJ, Leung S, Leslie WD: Use of proton pump inhibitors and the risk of osteoporosis related fractures. CMAJ 2008;179(4):319-326.

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Building Capacity to Measure Costs

• Concept Dictionary: Costing Methods: An Overview of Costing Health Services in Manitoba.

• Friesen KJ, Chateau D, Falk J, Alessi-Severini S, Bugden S. Cost of shingles: Population based burden of disease analysis of herpes zoster and postherpetic neuralgia. BMC Infectious Diseases 2017;17(1):69. [Abstract].

• Jacobs P, Roos NP: Standard cost lists for health care in Canada: Issues in validity and inter-provincial consolidation. Pharmaco Economics 1999;15(6):551-560. [read Abstract].

• Report Summary: The Cost of Smoking in Manitoba. Winnipeg, MB: Manitoba Centre for Health Policy; May 2015.

• Report Summary: Chronic Disease in Manitoba: What Are the Costs? Winnipeg, MB: Manitoba Centre for Health Policy; April 2010.

• Report Summary: The Cost of Hospitalizations in Manitoba. Winnipeg, MB: Manitoba Centre for Health Policy; March 2009.

• Report Summary: Funding Healthcare in Manitoba: A New Way to Slice the Pie. Winnipeg, MB: Manitoba Centre for Health Policy; October 2007.

• Report Summary: On Death and Dying in Manitoba. Winnipeg, MB: Manitoba Centre for Health Policy; February 2004.

• Forget E, Deber R, Roos L. Medical savings accounts: Will they reduce costs? CMAJ 2002;167:143-147.

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Other Articles of Interest

• The role of administrative data in the big data revolution in social science research

• Registries and administrative data: organization and accuracy

• A research registry: uses, development, and accuracy

• Record linkage strategies. Part I: Estimating information and evaluating approaches.

• Data quality in an information-rich environment: Canada as an example

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